Wednesday, July 22, 2015

Home Again, Home Again, Jiggity, Jig

I am back home.  I was dreading coming home from my month long visit with Adrienne because I had Dr. appts etc to go to when I got home.  It was great to be there but I had to come back to reality.   I had a mammogram on Monday which came back normal and was a relief because they thought they saw a nodule on the breast on the CAT scan.  The next day I saw the oncologist and I was anxious about that appt. because I was afraid he would send me right back to chemo.  The main reservation I have about doing chemo again is that the first six month round has left me with terrible neuropathy in my hands and legs and feet.  I am not sure if it will ever go away and certainly not if I do chemo again, but then my life seems to be at stake.  The odd thing is, is that my cancer antigen number has now gone down to 56 in the two months I have had without chemo.  Originally it was over 400.  I am doing a few alternative things but I am not sure if they are helping or not and then again the surgeon said the cancer had spread which is why he wouldn't do surgery.  My oncologist is not certain the CAT scan is showing things as they really are.  He wants me to wait another month, have another PET scan and then will decide between a certain kind of radiation or chemo.  He gave me a  prescription for the neuropathy.  We filled the prescription but after reading all of the side effects, I think I will hold off on that. A little scary I'd say.  I am happy to have another month without heavy drugs.  I am hanging in there!

Tuesday, July 7, 2015

I Plan to Fight

A few weeks ago (my last cancer antigen test) my cancer antigen---which I think is strictly a pancreatic cancer test and not super accurate--regardless, was down to 83.  We thought that was  fairly fantastic and then we got the devastating news  ( last blog) that the cancer had spread during chemo.  I will not give up the fight.    I am still at Adrienne's and feeling quite good.  She is doing better but still exhausted.  When I get home I have more tests and an oncologist appointment.  For now I will continue to live and enjoy life. :)